Recently we brought you the story about 17-month old Jaylah. She is battling Krabbe. A disease that is inherited.
It affects the central and peripheral nervous system, causing severe deterioration of your mental and motor functions.
Her grandparents Tony Shaffer and Angel Custer work opposite shifts to give her around the clock care and they’re also working hard to raise awareness about the issue.
They join Evan Forrester to talk more about their mission to save other families from going through the same issues.